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Breast Cancer: Stuff They Never Tell You

Survivors are part of a sisterhood, whether they choose to be or not. And sharing stories—funny, sad, ironic—is what sisters do best.

I was diagnosed with breast cancer in 2007.

Hearing the words, "I'm sorry, but it's cancer," comes as a shock to anyone, and I never thought I would hear them that day.

I was in my mid-40s, a marathon runner, healthy eater, non-smoker, no family history. The only real risk factor I had was giving birth to my first child after age 30.

I cried (hysterically), I went for a long run the next morning, I got a second opinion, I told only a handful of people and I went about my busy life trying not to think about it.

I made a list of other women I knew who had fought—or were fighting—this awful disease. In a few moments, I came up with more than 15 names of women in my community, most of whom were right around my age. Clearly, I was not alone. If I made that list today it would be at least twice as long.

As a journalist I have an ability to reach an audience greater than just my personal circle of friends. I thought then about how I could have an impact on this new "sisterhood," and those who would (unfortunately) join it in the future.

In the past five years I've helped publish numerous articles, written about my own experiences, promoted early detection, attended and written about mammogram parties, and have willingly been interviewed by several area TV stations.

When I interviewed Barbara Delinsky last year regarding the release of her 10th anniversary edition of "Uplift: Secrets from the Sisterhood of Breast Cancer Survivors," I realized that indeed I was part of that sisterhood.

There is so much more I could say—and write—about the experience of being diagnosed and treated. I could write about running the Race for the Cure just six weeks after my lumpectomy, or running the National Marathon to Fight Breast Cancer just 11 months after my diagnosis.

I could also talk about the things they never tell you: that the radioactive/blue dye cocktail that's injected as part of a sentinel node biopsy (performed along with a lumpectomy) turns your urine blue for the next day or two and sets off the security alarm going in and out of the drug store when you are just trying to pick up your painkillers.

Or, that getting radiation also involves getting a few tatoos. And getting marked up by Sharpies. If I had known, I would not have worn my brand new white shirt that day!

Most of what I'd like to say is if you hear those dreaded words – face it fighting. When you're diagnosed you have a disease. The best thing you can do is fight it, the best way you know how.

Talk about it if you can, and share your story. If you help just one person get an early diagnosis, you will have had an incredible impact on another's life.

Walk for the cure. Run for the cure. Support your friends and neighbors.

I ran home from the hospital after one of my radiation treatments. Just because my doctor said he never knew of anyone else doing that before, and because it was one of the ways I chose to face (spit in the face of) this disease.

A few weeks ago I modeled with other survivors in a fashion show that was part of a "Pink Party" fundraiser for Komen Connecticut. I'll have to say I was a little bit nervous about strutting across the stage in dangerously high heels and wiping out in front of a much larger crowd than I had expected.

"Who cares. This is our night. This is celebrating what we have all gone through," said one of the other models/survivors. She was right. Sharing that experience with those other women was so empowering.

I didn't want to join this sisterhood. But I am proud to call all of these women my "sisters."

SHARE: What is your story? What is something you experienced or learned about breast cancer that people don't normally talk about?

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Just a short thought to get the word out quickly about anything in your neighborhood.
Share something with your neighbors. Write a new post... What's up? Make an announcement, speak your mind, or sell something
Greg May 24, 2013 at 12:12 pm
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RFA May 23, 2013 at 02:20 pm
Ridiculous! Here we go with another housing crisis. The inflated prices these home are selling forRead More is going to back fire once again.
Claudia Quinn April 9, 2013 at 03:42 pm
Still vote for fuel pump cafe. It used to be called carrot. Her food is fresh and delicious. AndRead More she's in San Bruno.
Steve B April 9, 2013 at 04:11 am
By all means go to big joes! The place is small but thats what keeps it Great! good old San BrunoRead More Style not many left,I have lived in san Bruno most my life and remember a lot of the places in the pictures that hang on the walls. Great place
Mike April 9, 2013 at 02:53 am
Honestly, best breakfast is 'Millbrae Lyons Pancake Breakfast' but again, thats Millbrae.
watchfultaxpayer May 15, 2013 at 10:20 pm
Mr, Kiely, When they cut school days, isn't the savings in that the employees who directly work withRead More and for the children are deprived of that many days of pay??? Do the principals also lose 5 days pay? Does Hutt lose 5 days pay? Do the board members lose 5 days worth of their stipend. In other words, is the bad tasting medicine swallowed by everyone in the school district in a sincere effort to cure the ills of this school district Or is it just the teachers and the classified workers who are called upon to attempt a restoral of good health, the direct result of poor management and less than admirable leadership that has brought about ths crisis??
watchfultaxpayer May 15, 2013 at 10:04 pm
Mr, Kiely, Somewhere I heard that they were considering stopping contracting out PE at a largeRead More savings. Was that discussed last week? I was not abe to stay the entire evening. I question why they would have contracted for PE at the elementary level. Isn't that what recess and the balance of lunch time was for? Physical activity??? Thank you in advance for your always knowledgeable answer to my questions.
Chris Kiely April 30, 2013 at 09:54 pm
District cutting school days? The District is showing an agreement with the union which will saveRead More $200K. It doesn't show where the money is coming from, but the amount makes it look like they are cutting 5 days from the calendar. Dr. Hutt said at the last meeting that the length of the school year was still under negotiation.
Maria Pia May 16, 2013 at 07:56 pm
Have ya seen the spiffed up American Legion building!? Thank you to the volunteers ~Read More http://www.pgecurrents.com/2013/05/02/pge-volunteers-repaint-american-legion-building-in-san-bruno/